Sunday, 6 July 2014

Response to a fellow O.T. about the Purpose for my Upcoming Book

A fellow OT asked me: "For whom are you writing this book and why are you writing It"

Dear E

Thank you for your interest in my book. To answer your question, M.E. is a condition that is an epidemic and yet most people I have met even in the medical profession have no idea what it is. My book combines both personal experience with professional information, tips, tools and encouragement. It is aimed:

1) To give hope and tools for M.E. sufferers and to let them know that there one profession that can help them and that is Occupational Therapy, O.T. 

2) To give family members insight to help them understand both the condition, that it is real and how they can assist

3) For the medical team to know what the condition is and to hear from someone also in the medical profession it is not just a psychological cop out to life and to know to refer to O.T. if they have a client with this condition. I hope that from reading this book, those in the medical profession will begin to take their patients seriously. I know I wasted a fortune by going to doctors who had no idea that the symptoms they were doing all kinds of tests on were actually the very symptoms that are part of the diagnosis of the condition. If a health professional does not know how to manage a condition, and with ME there is no known cure as yet that I have come across, it is often kinder to be honest and admit one does not have a cure and the best intervention is referral to O.T. for management than to give false hope and waste a persons money by testing for something and then ignoring the results.

4) I hope it will help those M.E. sufferers who have sadly been forced into psychiatric hospitals since the medical team did not understand that M.E. is real to know that O.T. not only has standardised evaluations that can quantify a persons level of function but also has tools to help someone function to the optimum even if at times that requires assistive devices, pacing tasks, delegating and sometimes a carer. 

5) Since it is already written and just needs polishing, re-editing and self-publishing, many have encouraged me to complete the process

I hope this answers your question. If you would like to contribute towards the costs to take the time to complete research to make sure the book is up-to-date, to edit it professionally and to self publish, please either be in touch or make a donation via my crowd fundraiser below.

Thursday, 3 July 2014

One Page at a Time and the Book is Writ.

In the previous post on Occupational Therapy and M.E. I mentioned that I had written a book that needs some work to bring to print and make available to others. Since it is a time consuming process to complete and requires my paying a professional editor to do the finishing touches, I have begun a crowd funding campaign. Please read it share and make a contribution. Every donation helps, even a few dollars though to receive mention in the book we ask for a more substantial donation. 

Thank you for caring and for helping a goal that has been in the pipeline for years to finally come to fruition.

Occupational Therapy and M.E.

This post is prepared by Shoshanah Shear, Occupational Therapist and may not be copied or used by anyone without written permission from the author. 

Do you know anyone with M.E. or CFS or Post Viral Stress Disorder? Have you heard of these conditions? They used to all describe the same condition, more recently literature shows subtle differences between them. 

Most people have never heard of M.E. or C.F.S. Do you know the full names of these initials? If not, you are probably lucky, though they are no longer conditions that affects just a few people. The medical literature now talks of M.E. or Myalgic Encephalomyelitis as an epidemic. C.F.S is Chronic Fatigue Syndrome. 

Still never heard of them, don't worry, neither has a GIT specialist I spoke to a few days ago or a Chinese Medicine pracitioner. So what is the fuss about?

If you have read any posts on my blog, I have not written about this condition, at least, not on the blog, as far as I can remember. However, there is a major role that occupational therapists can and need to play in the intervention of those with M.E. and C.F.S. 

How did I come to know of this condition or that O.T. can assist. Sadly, I was diagnosed with it some 25 years ago and am currently doing further research to edit a book I wrote a few years ago. I've heard so many say it's just depression or it's all in the mind or it's just that you don't want to be well. None of these are true. I have many interests and skills and goals and much I would love to achieve and have had many setbacks thanks to this condition. How did I manage all these years? My increasing in the spiritual side of my life and using my profession in every aspect of my life. This is what I share in my book.

As to whether there is a need for a book about M.E. Well, yes there are other books out there, but I have not read any by occupational therapists. No I have not read every book on the topic, partly due to time, partly due to expense and mostly due to limited energy. However, in looking into the statistics of cases with this condition, Wikipedia gives figures for the US as 1 million and UK as a quarter million. I could not find stats on Wolrd Health Organization website. If anyone has other data, please leave a comment here or send me an email

If you have or know of someone with this condition, if they live in Israel, you are welcome to be in touch. I do work with clients privately in the capacity of occupational therapy. Though occupational therapy can not cure the condition, it can enable the person to function as optimally as possible and to have quality of life. 

Please share your thoughts or comments below. Stay tuned for further posts and how you can assist to make the book I have written become a reality.
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